Outcome measurement
PENPAL
Participation PROM Systematic Review
Systematic review
About the study
Improving how participation in daily life is measured across healthcare.
PENPAL is reviewing participation patient-reported outcome measures using COSMIN methods, with completion of the review anticipated in early 2027.
The project will explore whether existing measures are suitable and whether improved scoring methods can make them more useful. Later citizen-science work will invite people to share which participation outcomes matter most to them.